This is an article on research efforts being conducted on NCL and the waste management issues that children affected by NCL face. This is very exciting and I wanted to share it with you all. Please know that the donations that we receive not only go to provide Kaitlin with equipment and much needed assistive devices, but also a percentage of donations received go directly to research efforts in hopes of finding a treatment and cure for this childhood killer.
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FYI, this article is about CLN3, Kaitlin has CLN2 but the ideas are very similar.
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