Our summer is going much too fast! Kaitlin and I are enjoying every minute of our summertime together. Most of you know, but Kaitlin had her feeding tube surgery in May of this year and has since gained over 14 much needed pounds! The weight has been life changing for her. She is happy again and much more active. On the other hand, we are having a difficult time getting a hold on her seizure activity. Kaitlin is averaging a grand mal just about every 3-5 days which is not like her. We never had this much activity prior to the surgery. Could have something to do with the trauma of the gtube, or it could just be a progression of her disease. We are having some sleepless nights, difficulty controlling emotions and some new twitching and muscle spasms, but as usual, Kaitlin ends it all with a smile and a giggle for her mama. We had some bloodwork done earlier this week and have an appt with her neuro coming up. I have a lot of questions and points of concern to address, so hopefully we will have some answers soon and be on the right track.