Bumps in the Road

We are hoping for a great turn out tomorrow for Kaitlin's Walk and looking forward to seeing everyone. This week has been difficult for Kaitlin. She didnt sleep well and was very emotional. Saturday morning Kaitlin had a grand mal seizure lasting approx 3 mins. She fell asleep right after and the rest of that day was either sleeping or crying and jerking. Sunday she quieted down a bit and was mostly back to baseline on Monday. Unfortunatly, Kaitlin had another seizure today at noon and then yet another at 2pm. This is very out of character for her. I called her docs and they said to administer diastat(a rectal anti-convulsant). I did so and she stopped the jerking that always seems to follow her seizures. Kaitlin is resting again and we hope to be happy and alert for the walk tomorrow.

On a better note, we went to the surgeon this week and got her mic key changed out for a bigger one. Since surgery Kaitlin has gained 5.2 lbs back from the 6 that she lost. She still has a way to go until I'm happy with her weight, but I think she is off to a great start!